Wednesday, June 24, 2009

Here Comes The Sun!

I love that song. It has been in my head for the better part of the week.

"Here comes the sun,
here comes the sun,
and I say it's all right
Little darling, it's been a long cold lonely winter
Little darling, it feels like years since it's been here
Here comes the sun,
here comes the sun and I say it's all right
Little darling, the smiles returning to the faces
Little darling, it seems like years since it's been here Here comes the sun, here comes the sun and I say it's all right
Sun, Sun, Sun here it comes x5
Little darling, I feel that ice is slowly melting
Little darling, it seems like years since it's been clear
Here comes the sun, here comes the sun, and I say it's all right
It's all right "

Sing it with me!...and George Harrison. lol

So why is this song in my head?

Well, I've found an agent for my books. It time! lol I'm very excited to have gone this far with my career despite it all.

And the other reason why I'm listening to this song? I've taken to walking my dog twice a day, and because of Fibro I have a sensitivity to the sun. A Sun Allergy.

It makes me itch, it gives me rashes and I burn within five minutes if I don't have sun screen on! I'm miserable, which brings me to my mail box:

"Dear Gin,
Hope you're okay (Thanks Barb!) sense I haven't seen you around lately. I wanted to ask you about sunburns and rashes. I have a boat and can only go on it a few times a year because of my skin. I remember you talked about your rash before. Any help would be awesome, thanks. barbara"

Yeah, I've been a bit busy and I'm so sorry. I can't be outside without sunscreen and even then I still burn. I have a bottle of 50 right now and I still burned.

My sister (at least I think it was my sister...thank you fibro fog) told me recently that she heard anything over 30 block is just for show. I don't know why that is, I'll have to do some research on it but I know that I didn't burn in the Las Vegas desert when I had 80 block on. So someone better tell me scientifically why I still burned wearing 50 while walking my puppy. I've seen 100 proof make the shelves these days but I haven't tried it. I'm very...very tempted to go buy some but if I remember correctly, it was expensive.

I go to the dermatologist on the 9th of July before my trip to see about the crazy rash I get on my upper torso and biceps. I'll ask about the sunscreen and report back to you all as usual.

Again, in case I didn't make it clear, I am so sorry for the long periods of absence. I've got a lot of work to do and little time to do it. After the RWA conference in July, I should have a little more time.

All my best wishes for 98% days My Wonderful, Supportive, Friends.

Friday, June 12, 2009

I Need A Hero!

I went to a gastroenterologist a few days ago, and mentioned my yeast theory, only to be treated like a simple child without a basic understanding of logic. What was my yeast theory? I had horrible IBS, or so I thought, where I couldn't eat anything without getting an upset stomach. Then I received a yeast infection and after I took the pill, the following day nothing upset my belly. According to my new Gastro doctor, this was purely a coincidence.


Boy am I annoyed.

And to make matters worse, the woman told me I have IBS (even though I feel fine for the most part) and gave me a perscription.

Okay, I thought, I'll try it. You can't get better if you don't try everything right? What's the harm and hey...maybe I can eat ice cream on these pills.

I got the perscription filled and to my horror...there was a warning in the pages that taking this medication is not advised for those who have had bad reactions to anti-depressants.

Horrified that, despite mentioning all of my bad reactions and the near suicide attempt I made on them years ago, I was still perscribed an anti-depressant...I began questioning the validity of the medical profession.

What I a hero. A doctor who listens and tries different things. A doctor who believes me when I say "I can't take that."

This doctor told me only that systemic candidas is only suffered by organ transplant patients, blood transfusion patients and those with AIDS.

My question is, with as little as we know about Fibromyalgia, isn't it possible that systemic candidas can be brought on by it? No? Why not? Those are the answers I want.

Who thought it was possible to suffer pain without any physical evidence of existance 20 years ago? Barely anyone. Fibro is still considered to be a myth in most of the world, and the medical community is still greatly confused by the syndrome.

It is moments like these where I feel so jaded. I just have to take a deep breath and continue the doctor hero search.

All my best to you, My Friends. I hope you far better than I on the doctor front.

98% days to you all,

Wednesday, June 3, 2009

Prescription Tidbit

One of my many doctors said something interesting to me today that I thought I would share with all of you. I'll leave it to your discretion to think of it what you will.

LOL. With a lead-up like that, I can hear about half of you groaning. "Great, what did some quack say this time?"

I was at the Allergist, for once, not for me but for my daughter and when we were discussing medication, she held up her hand and said "Don't ask me about XXXXX" I've X'd out the name to keep the lawyers at bay.

When I assured her that it hadn't been on my list of questions (Yes, I have to make a list or I forget the things I want to talk to the doctor about.) I asked her why she had such animosity towards the drug.

Her answer was this: "As an allergy medication which the pharm companies tout in the commercial that it can be, it does nothing because it is an asthma medication. It's not even a good asthma medication either and it isn't worth the paper to prescribe it on."

So what is with all of the commercials? You'd think with all the advertising for this drug, it would work well. She smiled (You know the kind of she wanted to pat me on the head for being cute.) and said "Medications that do what they are supposed to and are the best in their field, don't need to waste the advertising dollars...doctors prescribe drugs that work. Now if their are two that are similar and are put out by opposite companies, you might see them battle it out on television."

Huh. Now she had my attention. I felt a little foolish for thinking that pharm commercials = good medication. From my stand point I thought the most advertised medications meant they were worth the money it would take to make a commercial. No wonder I'm not in business!

She's an allergy doctor, not a fibro specialist, but I heard myself asking anyway. "I hear a lot about XXXX helping with Fibromyalgia but when I tried it, it did nothing for me yet it is all over the television. Still, a lot of doctor's seem to prescribe it."

Her answer?

"When Doctors don't know how to treat or cure something, they go with what is available and hope for the best."

I thanked her for her time, but the thought stuck with me for a while. Normally, I would take what she said and store away what made sense and think on the rest. However, I remembered my R.A. saying something that gave me just as much food for thought a long time ago. She wanted to prescribe me anti-depressant meds and I informed her that I have a horrible reaction to them. Had even had thoughts of suicide while on them.

I said, "I can't trust them not to mess with my head. If you tell me it will work for sure, I'll give them a shot."

Her answer: "These medicines make Fibro patients feel better by tweaking their brain communicators. Are they in less pain? Some, or maybe they just don't think the same way they used to."

I know she didn't mean to make it sound like that but I pretty much got out of that pep-talk as... Anti-depressants can make people think they feel better.

Many people swear by their anti-depressants and I'm all for whatever feels good, whether it is feeling good in truth or in our heads. Who cares as long as it works.

Still...thinking about what I've been told, I'm even more reluctant to try new drugs, especially ones I see on TV!


Tell me what you think, My Friends
All my best wishes for 98% days!